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Virtual Saltford Santa Dash 2020 - Saturday 5th – Saturday 19th December 2020
Jessie May is a Bristol-based charity providing nursing care at home for children and young people with life limiting conditions who are not expected to live beyond the age of 19. Jessie May was established in September 1994 by Chris and Philippa Purrington, following the death of their baby daughter Jessica May. She died from a genetic condition known as severe Spinal Muscular Atrophy when she was only 4½ months old.
Whilst the family were visiting relatives in Bristol, Jessica was admitted to the local hospital. It was here that the family learnt that the support they had received back at home in High Wycombe was not available to families caring for their child at home in the Bristol area. Jessica was cared for by her family at home throughout her illness. She died peacefully at home in her father’s arms, in privacy, with dignity and surrounded by all those who loved her.
Jessica’s parents were determined to do what they could to enable other children with conditions like Jessica’s and their families to have support in their own homes and the choice to die at home when that time comes. After a lot of hard work and perseverance initial funding was secured, and Jessie May was officially launched in 1996.
Off the Record Bath and North East Somerset (OTR) improves the emotional health and wellbeing of young people. We want every young person in Bath and North East Somerset and beyond to be emotionally healthy, confident and empowered in themselves.
We provide a range of free services including counselling, listening support, youth participation, advocacy and specialist groups, support for care leavers and a LGBT+ focused youth group.
Jessie May is a local hospice charity that provides specialist nursing care for terminally ill children in
their own homes and offers emotional support to their families.
Off The Record (OTR), Bath and North East Somerset, improves the emotional health and wellbeing of young people in our area by
providing a range of free services including counselling and specialist support groups.